Courses:

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Readings by Session

Alexander, Brian. Rapture: A Raucous Tour of Cloning, Transhumanism, and the New Era of Immortality. Cambridge, MA: Perseus Publishing, 2004. ISBN: 9780465001057.

Gawande, Atul. Complications: A Surgeon's Note on an Imperfect Science. New York, NY: Metropolitan Books, 2002. ISBN: 9780805063196.

Farmer, Paul. Pathologies of Power: Health, Human Rights, and the New War on the Poor. Berkeley, CA: University of California Press, 2003. ISBN: 9780520235502.

Lock, Margaret. Twice Dead: Organ Transplants and the Reinvention of Death. Berkeley, CA: University of California Press, 2001. ISBN: 9780520228146.

Roberts, Dorothy. Killing the Black Body: Race, Reproduction and the Meaning of Liberty. New York, NY: Pantheon Books, 1997. ISBN: 9780679442264.

Ginsburg, Faye D., and Rayna Rapp, eds. Conceiving the New World Order: The Global Politics of Reproduction. Berkeley, CA: University of California Press, 1995. ISBN: 9780520089143.

Inhorn, Marcia C., and Frank Van Balen, eds. Infertility Around the Globe: New Thinking on Childlessness, Gender, and Reproductive Technologies. Berkeley, CA: University of California Press, 2002. ISBN: 9780520231375.

Tong, Rosemarie, Gwen Anderson, and Aida Santos, eds. Globalizing Feminist Bioethics. Boulder, CO: Westview Press, 2000. ISBN: 9780813366159.

Lammers, Stephen E., and Allen Verhey, eds. On Moral Medicine: Theological Perspectives in Medical Ethics. Grand Rapids, MI: William B. Eerdmans Pub., 1998. ISBN: 9780802842497.

Kuhse, Helen, and Peter Singer, eds. A Companion to Bioethics. Oxford, UK; Malden, MA: Blackwell Publishers, 1998. ISBN: 9780631197379.

———. Bioethics: An Anthology. Malden, MA: Blackwell Publishers, 1999. ISBN: 9780631203117.

Tilley, Brian. It's My Life. HIV/pharmaceuticals South Africa, 2001, 74 min.

Directed by Alexandra Halkin and Deb Ellis. Skin Deep. 1997, Norplant 15 min.

Directed by Stephen Trombley. The Lynchburg Story: Eugenic Sterilization in America. 55 min.

Goldstein, David B., and Huntington F. Willard. "Race, the genome." Boston Globe, January 17, 2005.

National Institutes of Health. The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research. The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, April 18, 1979.

National Institutes of Health. Stem Cell Information.

Course assigned readings.

Lec #	Topics	Readings
Part One: Foundations of Bio-Medical Ethics and Modern "Bio-Politics"
1	Section One: Introduction: Bio-Medical Ethics and Bio-Politics: From Clinical Practice and Medical Research to Crisis of Medical Humanitarianism in the Field	Foucault, Michel. "The Birth of Biopolitics." Ethics: Subjectivity and Truth. Vol. 1, Essential Works of Foucault. London, UK: Penguin Books, 2000, pp. 73-79. ISBN: 9780140259544. ———. "The Birth of Social Medicine." Power. Vol. 3, Essential Works of Foucault. London, UK: Penguin Books, 2002, pp. 134-156. ISBN: 9780140259575.
2	Section Two: Principles of Ethical Medical Practice and Research: Autonomy, Justice, Beneficence, and Nonmaleficience What is Bio-Medical Ethics?	*Kuhse, Helga, and Peter Singer. "What is Bioethics? A Historical Introduction." A Companion to Bioethics. Oxford, UK; Malden, MA: Blackwell Publishers, 1998, pp. 1-11. ISBN: 9780631197379. *Rachels, James. "Ethical Theory and Bioethics." A Companion to Bioethics. Oxford, UK; Malden, MA: Blackwell Publishers, 1998, pp. 15-23. ISBN: 9780631197379. *Rosenberg, Charles E. "Meaning, Policies, and Medicine: On the Bioethical Enterprise and History." Bioethics and Beyond. Oxford, UK; Malden, MA: Blackwell Publishers, 1998, pp. 27-46. ISBN: 9780631197379.
3-4	Section Three: Competing Discourses on Bioethics and Bio-Medical Practice - Anthropology, Feminism, Theology, and Law	Lecture 3 *Marshall, Patricia A., and Barbara A. Koenig. "Bioethics in Anthropology: Perspectives on Culture, Medicine, and Morality." Medical Anthropology: Contemporary Theory and Method. Revised ed. Edited by Carolyn F. Sargent and Thomas M. Johnson. Westport, CT: Praeger, 1996, pp. 349-373. ISBN: 9780275952655. *Haraway, Donna J. "Situated Knowledges: The Science Question in Feminism and the Privilege of Partial Perspective." Simians, Cyborgs, and Women: The Reinvention of Nature. New York, NY: Routledge, 1991, pp. 183-201. ISBN: 9780415903875. Lecture 4 *Diniz, Debora, and Ana Christina González Vélez. "Feminist Bioethics: The Emergence of the Oppressed." Globalizing Feminist Bioethics. Edited by Rosemarie Tong, Gwen Anderson, and Aida Santos. Boulder, CO: Westview Press, 2000, pp. 62-72. ISBN: 9780813366159. *McCormick, Richard A. "Theology and Bioethics." On Moral Medicine: Theological Perspectives in Medical Ethics. Edited by Stephen E. Lammers and Allen Verhey. Grand Rapids, MI: William B. Eerdmans Pub., 1998, pp. 63-71. ISBN: 9780802842497. *Farley, Margaret A. "Feminist Theology and Bioethics." On Moral Medicine: Theological Perspectives in Medical Ethics. Edited by Stephen E. Lammers and Allen Verhey. Grand Rapids, MI: William B. Eerdmans Pub., 1998, pp. 90-101. ISBN: 9780802842497. Van der Burg, W. "Bioethics and Law: A Developmental Perspective." Bioethics 11, no. 2 (1997): 91-114.
5-7	Section Four: The Creation of Doctors and the Clinical Gaze or "Whose Body Is It, Anyway?"	Lecture 5 *Good, Byron. "How Medicine Constructs its Objects." Medicine, Rationality and Experience: An Anthropological Perspective. Cambridge, UK: Cambridge University Press, 1994, pp. 65-87. ISBN: 9780521425766. *Good, Mary-Jo. "Narrative Strategies in Presentation and Performance," and "The Social Production of Physician Competence." Chapters 6 and 7 in American Medicine: The Quest for Competence. Berkeley, CA: University of California Press, 1995, pp. 125-167. ISBN: 9780520088962. Lecture 6 *Gawande, Atul. Complications: A Surgeon's Note on an Imperfect Science. New York, NY: Metropolitan Books, 2002, part one, pp. 3-106. ISBN: 9780805063196. Lecture 7 * Gawande, Atul. Complications: A Surgeon's Note on an Imperfect Science. New York, NY: Metropolitan Books, 2002, part three, pp. 187-252. ISBN: 9780805063196.
8-9	Section Five: Ethical Issues in the Practice of Medicine: Confidentiality and Disclosure; Patient Autonomy and Informed Consent	Lecture 8 *Tse, C. Y., A Chong, and S. Y. Fok. "Breaking Bad News: A Chinese Perspective." Palliative Medicine 17, no. 4 (Jun 2003): 339-343. *Blackhall, L. J., G. Frank, S. Murphy, and V. Michel. "Bioethics in a Different Tongue: the Case of Truth-Telling." Journal of Urban Health 78, no. 1 (Mar 2001): 59-71. Kuhse, Helen, and Peter Singer, eds. Bioethics: An Anthology. Malden, MA: Blackwell Publishers, 1999, pp. 485-512. ISBN: 9780631203117. Lecture 9 *Kuther, T. L. "Medical Decision-Making and Minors: Issues of Consent and Assent." Adolescence 38, no. 150 (Summer): 343-358. *Gordon, E. J., and C. K. Daugherty. "'Hitting You Over the Head': Oncologists' Disclosure of Prognosis to Advanced Cancer Patients." Bioethics 17, no. 2 (Apr 2003): 142-168. Kuhse, Helen, and Peter Singer, eds. Bioethics: An Anthology. Malden, MA: Blackwell Publishers, 1999, pp. 515-550. ISBN: 9780631203117.
10-11	Section Six: Dilemmas of Public Health Practice: The Limits of Resources and its Allocation	Lecture 10 *Hiatt, Howard. "Protecting the Medical Commons: Who Is Responsible." New England Journal of Medicine 293, no. 5 (July 31, 1975): 235-241. *Hiatt, Howard, and M. C. Weinstein. "Will Disease Prevention Spare the Medical Commons?" Ciba Found Symp 110 (1985): 218-35. *Zoloth-Dorfman, Laurie, and Susan B. Rubin. "The Patient as Commodity: Managed Care and the Question of Ethics." Journal of Clinical Ethics Winter 6, no. 4 (1995): 339-357. Lecture 11 *Sanchez, L. M., and S. M. Turner. "Practicing Psychology in the Era of Managed Care. Implications for Practice and Training." American Psychologist 5, no. 2 (Feb 2003): 116-129. *Dickey, et. al. "Guideline Recommendation for Treatment of Schizophrenia: The Impact of Managed Care." Archives of General Psychiatry 60, no. 4 (Apr 2003): 340-348. *Good, Mary-Jo DelVecchio. "Clinical Realities and Moral Dilemmas: Contrasting Perspectives from Academic Medicine in Kenya, Tanzania, and America." Bioethics and Beyond. Oxford, UK; Malden, MA: Blackwell Publishers, 1998, pp. 167-196. ISBN: 9780631197379. Kuhse, Helen, and Peter Singer, eds. Bioethics: An Anthology. Malden, MA: Blackwell Publishers, 1999, pp. 351-379. ISBN: 9780631203117.
Part Two: Medical Technologies, the Body, and the State
12-13	Section Seven: Medical Research and Ethical Medical Experimentation - from Eugenics to Anti-Retroviral Drug Trials	Lecture 12 *Chadwick, G. L. "Historical Perspective: Nuremberg, Tuskegee, and the Radiation Experiments." Journal of the International Association of Physicians in AIDS Care 3, no. 1 (1997): 27-28. *Proctor, Robert. "Nazi Medicine and the Politics of Knowledge."  The "Racial" Economy of Science: Toward a Democratic Future. Bloomington, IN: Indiana University Press, 1993, pp. 344-358. ISBN: 9780253208101. *Jones, James. "The Tuskegee Syphilis Experiment: 'A Moral Astigmatism.'" The "Racial" Economy of Science: Toward a Democratic Future. Bloomington, IN: Indiana University Press, 1993, pp. 275-286. ISBN: 9780253208101. *World Medical Association Declaration of Helsinki. (Approx. 5 pages.) *National Bioethics Advisory Commission. Ethical and Policy Issues in Research Involving Human Participants. August 2001, Summary. (Approx. 20 pages.) (PDF) Lecture 13 *Francis, C. K. "Medical Ethos and Social Responsibility in Clinical Medicine." Journal of Urban Health 78, no. 1 (March 2001): 29-45. *Angell, Marcia. "The Ethics of Clinical Research in the Third World." NEJM 337, no. 12 (Sept 18, 1997): 847-849. *———. "Investigators' Responsibilities for Human Subjects in Developing Countries." NEJM 342, no. 13 (March 30, 2000): 967-969. *Lurie, Peter, and Sidney M. Wolfe. "Unethical Trials of Interventions to Reduce Perinatal Transmission of the Human Immunodeficiency Virus in Developing Countries." NEJM 337, no. 12 (Sept 18, 1997): 853-856. *Oguz, N. Yasemin. "Research Ethics Committees in Developing Countries and Informed Consent: With Special Reference to Turkey." The Journal of Laboratory and Clinical Medicine 141, no. 5 (May 2003): 292-296. *National Bioethics Advisory Commission. Ethical and Policy Issues in International Research: Clinical Trials in Developing Countries. Executive Summary. (Approx. 15 pages.)
14-15	Section Eight: Race, Contraception and Family Planning: Contemporary Eugenics?	Lecture 14 *Roberts, Dorothy. Killing the Black Body: Race, Reproduction and the Meaning of Liberty. New York, NY: Pantheon Books, 1997, chapter 2, pp. 56-103. ISBN: 9780679442264. Directed by Stephen Trombley. The Lynchburg Story: Eugenic Sterilization in America. 55 min. Lecture 15 *Continue reading Killing the Black Body: Race, Reproduction and the Meaning of Liberty. Chapter 3, pp. 104-149, chapter 6, pp. 246-293. Directed by Alexandra Halkin and Deb Ellis. Skin Deep. 1997, 15 min.
Part Three: Globalizing Bioethics - The Politics of Reproduction
16-17	Section Nine: The Politics of Gender, Reproductive Technologies and Family Planning across Cultures	Lecture 16 *Petchesky, Rosalind Pollack. "The Body as Property: A Feminist Re-vision." Conceiving the New World Order: The Global Politics of Reproduction. Edited by Faye D. Ginsburg and Rayna Rapp. Berkeley, CA: University of California Press, 1995, pp. 387-406. ISBN: 9780520089143. *Pearce, Tola Olu. "Women's Reproductive Practices and Biomedicine: Cultural Conflicts and Transformations in Nigeria."  Conceiving the New World Order: The Global Politics of Reproduction. Edited by Faye D. Ginsburg and Rayna Rapp. Berkeley, CA: University of California Press, 1995, pp. 195-208. ISBN: 9780520089143. *Gill, Gurjeet K. "Female Feticide as a Contemporary Cultural Practice in the Punjab." Dialectical Anthropology 23, no. 2 (1998): 203-213. Lecture 17 *Maternowska, M. Catherine. "A Clinic in Conflict: A Political Economy Case Study of Family Planning in Haiti." Contraception Across Cultures. Edited by Andrew Russell, Elisa J. Sobo, and Mary S. Thompson. Oxford; New York, NY: Berg, 2000, pp. 103-126. ISBN: 9781859733868. *Anagnost, Ann. "A Surfeit of Bodies: Population and the Rationality of the State in Post-Mao China." Conceiving the New World Order: The Global Politics of Reproduction. Edited by Faye D. Ginsburg and Rayna Rapp. Berkeley, CA: University of California Press, 1995, pp. 22-41. ISBN: 9780520089143. Jok, Jok Madut. "Militarism, Gender and Reproductive Suffering: the Case of Abortion in Western Dinka." Africa 69, no. 2 (1999): 194-212.
18	Section Ten: Infertility, Assisted Reproduction, Kinship, and Citizenship across Cultures	*Thompson, Charis M. "Fertile Ground: Feminists Theorize Infertility." Infertility Around the Globe: New Thinking on Childlessness, Gender, and Reproductive Technologies. Edited by Marcia C. Inhorn and Frank Van Balen. Berkeley, CA: University of California Press, 2002, pp. 52-78. ISBN: 9780520231375. * Paxson, Heather. "With or Against Nature? IVF, Gender, and Reproductive Agency in Athens, Greece." Social Science and Medicine 56 (2003): 1853-1866. *Kahn, Susan Martha. "Rabbis and Reproduction: The Uses of New Reproductive Technologies among Ultraorthodox Jews in Israel."  Infertility Around the Globe: New Thinking on Childlessness, Gender, and Reproductive Technologies. Edited by Marcia C. Inhorn, and Frank Van Balen. Berkeley, CA: University of California Press, 2002, pp. 283-297. ISBN: 9780520231375.
19-20	Section Eleven: State Politics of Human Genetic Engineering, Stem Cell Research, Cloning, and "Surplus Embryos" Lecture 20 Guest Speaker: Dr. James Sherley, MIT Assoc. Professor of Biological Engineering	Lecture 19 *Alexander, Brian. Rapture: A Raucous Tour of Cloning, Transhumanism, and the New Era of Immortality. Cambridge, MA: Perseus Publishing, 2004, chapters 1-6, pp. 1-124. ISBN: 9780465001057. United States National Bioethics Advisory Commission. Ethical Issues in Human Stem Cell Research. Executive Summary, September 1999, 20 pages. Lecture 20 *Alexander, Brian. Rapture: A Raucous Tour of Cloning, Transhumanism, and the New Era of Immortality. Cambridge, MA: Perseus Publishing, 2004, chapter 7-conclusion, pp. 125-258. ISBN: 9780465001057. United States National Bioethics Advisory Commission. Cloning Human Beings. Executive Summary, June 1997, 5 pages. "Human Cloning and Human Dignity: An Ethical Inquiry." The President's Council On Bioethics. Executive Summary, July 2002, pp. xxi-xx. (Skim chapters of the text at will.)
Part Four: Playing God? Life, Death, Bodies, and Spirits
21-24	Section Twelve: Organ Transplantation, End of Life Issues, and Death across Cultures	Lecture 21 *Lock, Margaret. Twice Dead: Organ Transplants and the Reinvention of Death. Berkeley, CA: University of California Press, 2001, pp. 1-102. ISBN: 9780520228146. Lecture 22 *Lock, Margaret. Twice Dead: Organ Transplants and the Reinvention of Death. Berkeley, CA: University of California Press, 2001, pp. 103-189. ISBN: 9780520228146. Lecture 23 *Lock, Margaret. Twice Dead: Organ Transplants and the Reinvention of Death. Berkeley, CA: University of California Press, 2001, pp. 191-290. ISBN: 9780520228146. Lecture 24 *Lock, Margaret. Twice Dead: Organ Transplants and the Reinvention of Death. Berkeley, CA: University of California Press, 2001, pp. 291-377. ISBN: 9780520228146.
Part Five: Human Rights, Infectious Disease, and the Global Medical Commons
25-26	Section Thirteen: Clinical Dilemmas, Public Health, and Global Pharmaceuticals	Lecture 25 *Farmer, Paul. Pathologies of Power: Health, Human Rights, and the New War on the Poor. Berkeley, CA: University of California Press, 2003, chapters 2 and 4, pp. 51-90, 115-133. ISBN: 9780520235502. Tilley, Brian. It's My Life. First half - HIV/pharmaceuticals South Africa, 74 min. Lecture 26 *Farmer, Paul. Pathologies of Power: Health, Human Rights, and the New War on the Poor. Berkeley, CA: University of California Press, 2003, chapters 6-7, pp. 160-195. ISBN: 9780520235502. Angell, Marcia. "The Pharmaceutical Industry - To Whom Is It Accountable?" NEJM 342, no. 25 (June 22, 2000): 1902-1904. Tilley, Brian. It's My Life. Conclusion.